Senior Director Patient Advocacy

J oin Us in Tackling Autoimmune Disease at Its Root At Vor, we believe science can do more than manage symptoms. It can change the course of disease. By advancing telitacicept, a first- and potentially best-in-class dual BAFF/APRIL inhibitor, we are silencing upstream survival signals and stopping downstream autoimmune cascades.

Together, we are addressing disease at its root cause and rewriting what is possible for patients worldwide. When you join Vor, you’re not just working on a medicine. You’re part of a mission to redefine the future of autoimmune care.

Why Work at Vor? Impact: Contribute directly to a medicine with best-in-disease Phase 3 results in myasthenia gravis and expansion into multiple autoimmune diseases. Growth: Be part of a rapidly scaling company with opportunities to grow your career in science, clinical development, commercial strategy, and beyond.

Innovation: Work on a platform with potential beyond one indication — a therapy that has already shown consistent results across lupus, IgA nephropathy, and Sjögren’s syndrome. Belonging: Join a culture where every voice is heard, and where our shared mission unites us across functions and geographies. Job Summary: We are seeking an experienced and mission-driven Senior Director of Patient Advocacy Policy to lead our engagement with the patient community and shape and excute Vor’s engagement with the patient community.

This individual will serve as a key interface between the company leadership and patient advocacy organizations, ensuring the patient voice is embedded across our business and reflected in decision-making, strategy, and communication. The ideal candidate is comfortable operating in a hands-on “player coach” environment, brings deep experience developing and executing patient advocacy engagement strategies in a biotech environment, excels in collaborative, matrixed organizations, and is eager to grow alongside a rapidly evolving company. Experience and relationships in the rare and autoimmune disease.

This position reports to the Chief Medical Affairs Officer and works cross-functionally across Corporate Affairs, R D, Clinical Operations, Commercial and Medical Affairs.

Responsibilities

: Patient Advocacy Leadership · Develop and execute a comprehensive patient advocacy strategy aligned with Vor’s mission, pipeline, and business objectives · Leads others and serves as a primary point of contact for all patient advocacy groups, building strong, trusted, and enduring relationships · Translate the needs and perspectives of patient communities into meaningful insights for internal teams · Ensure the patient voice is consistently integrated into clinical development, regulatory affairs policy, communications, and programs · Lead patient-centric initiatives and engagements, including patient councils, listening sessions, and educational programs · Continuously assess and refresh the advocacy landscape, maintaining regular engagement to align on short- and long-term priorities and initiatives · Translate patient and community insights into actionable recommendations that inform internal strategy and decision-making Cross-Functional Collaboration · Operate effectively within a matrixed environment, collaborating across multiple teams to embed patient insights into decision-making · Provide strategic counsel to internal partners to ensure alignment between corporate priorities and patient community needs · Partner with corporate affairs, communications, and policy teams to ensure consistency in messaging, outreach, and advocacy engagements · Foster collaboration and open dialogue across teams to proactively identify solutions and enhance organizational effectiveness Organizational Impact · Champion a culture of patient-centricity, building organizational understanding of patient experiences and needs · Partner with internal leaders to inform strategy, shape narratives, and ensure transparency and alignment with the patient community · Manage multiple in